Tuesday, 8 January 2013

The reality of Ehlers Danlos Syndome

 
Please say a prayer/spare a thought/take a moment of your time to be quiet and still for my sweet friend Kelly Wehling Hardie and her family.   Kelly died on Saturday, she was 29 years old....that's no age at all is it?   So please, whether we talk on a regular basis or not, whether you have EDS or not.... just say a prayer or take a minute of your day to spare a thought for everyone with EDS....I know I live with it every day.  
She was born 27 February 1983 in Maryville, Ill.. She treasured working with her dad in the crop insurance business, loved her pets, and antiquing. She was an accomplished swimmer, golfer, college and businesswoman.  .
Kelly died Saturday 5 January at Barnes-Jewish Hospital in St. Louis due to complications resulting from Vascular EDS. In addition to her husband, she is survived by a half-brother and a half-sister as well as numerous aunt, uncles and cousins.Kelly's family requests memorials to charity of donor's choice or Ehlers-Danlos Syndrome Network Cares Research Fund at www.ehlersdanlosnetwork.org.